S.L.E. Lupus Foundation
330 Seventh Avenue, Suite 1701, New York, NY 10001
Phone: 212.685.4118   Fax: 212.545.1843
Lupus@LupusNY.org

Article source: http://www.lupusny.org/news/foundation-news/2012/05/17/upcoming-lupus-la-orange-ball-making-headlines-hollywood-attendees

The S.L.E. Lupus Foundation supports cultivation of the bioscience industry in New York State as a critical step in fostering innovative research into complex diseases such as lupus. We agree with Kathleen Arntsen, President of the Lupus Foundation of Mid and Northern New York, Inc., a co-member of the Lupus Research Institute Coalition of advocacy groups nationwide. Arntsen spoke about the implications of a new report from the Public Policy Institute about the challenges in attracting and retaining private-sector jobs and companies in New York’s lucrative bioscience sector. She said, “For any New Yorker struggling with their own health condition or that of a loved one, medical research is our beacon of hope shining through the stormy seas of disease and an inadequate health care system. Research yields innovative therapies and diagnostic tools as well as the discovery of disease pathogenesis and cures.”  The S.L.E. Lupus Foundation has helped build the research community in New York since it was founded 42 years ago with the same conviction that the best service we can give people living with lupus is to support the science that will bring them the cure. The Lupus Research Institute was formed by the Foundation to further the most innovative research in lupus across the nation and has become the world’s leading private supporter of innovative research in lupus, pioneers discovery and champions scientific creativity to find solutions to this dangerous autoimmune disease. 

Article source: http://www.lupusny.org/news/foundation-news/2012/05/16/sle-lupus-foundation-urging-nys-officials-foster-medical-research-lu

S.L.E. Lupus Foundation
330 Seventh Avenue, Suite 1701, New York, NY 10001
Phone: 212.685.4118   Fax: 212.545.1843
Lupus@LupusNY.org

Article source: http://www.lupusny.org/news/foundation-news/2012/05/15/sle-lupus-foundation-nyc-billboard-captures-attention-new-times-squa

S.L.E. Lupus Foundation
330 Seventh Avenue, Suite 1701, New York, NY 10001
Phone: 212.685.4118   Fax: 212.545.1843
Lupus@LupusNY.org

Article source: http://www.lupusny.org/lupus-news/2012/05/15/canadian-comedian-raising-awareness-lupus-serious-disease

S.L.E. Lupus Foundation
330 Seventh Avenue, Suite 1701, New York, NY 10001
Phone: 212.685.4118   Fax: 212.545.1843
Lupus@LupusNY.org

Article source: http://www.lupusny.org/news/foundation-news/2012/05/11/sle-lupus-foundation-loops-ny-world-lupus-day

The treatment ORENCIA® (abatacept) currently approved for rheumatoid arthritis is being explored as a possible therapy for lupus nephritis (kidney disease). Results will be presented by Richard Furie, MD at the upcoming European League Against Rheumatism (EULAR) Annual European Congress of Rheumatology in Berlin, June 6-9 medical meeting. A member of the S.L.E. Lupus Foundation Medical Advisory Board, Dr. Furie is Director, The Systemic Lupus Erythematosus and Autoimmune Disease Treatment Center and Chief, Division of Rheumatology and Allergy-Clinical Immunology, North Shore-LIJ Health System.

Article source: http://www.lupusny.org/lupus-news/2012/05/14/results-study-arthritis-treatment-lupus-nephritis-be-presented-medical-meeting

Learn about the results of the LUMINA study and its implications for reducing racial disparities in lupus at a seminar conducted by the National Institute on Minority Health and Health Disparities (NIMHD) in collaboration with the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) on May 17 at 2:00 – 3:30 PM. You can attend in-person at the National Institutes of Health or watch it live on your computer. LUMINA stands for LUpus in MInority populations NAture vs. nurture and is a multi-ethnic cohort study, initially funded by NIAMS.

The presentation, Impact of Ethnicity on the Course and Outcome of Lupus: Lessons from LUMINA, is being given by lead researcher Dr. Graciela S. Alarcón. The study is following 600 Caucasian, African American, and Hispanic patients to determine how different factors including genetics influence diagnosis, treatment and outcomes among patients with lupus from ethnic minority groups. In her presentation, Dr. Alarcón will discuss the impact of ethnic background on lupus, as shown by data from the LUMINA study. (Click here for abstract)

Lupus is two to three times more common in African American women than in Caucasian women and is also more common in women of Hispanic descent. African American and Hispanic women are also more likely to experience more severe disease symptoms.

The Lupus Research Institute has been working to alleviate racial disparities in lupus for over a decade. With our National Coalition of advocates from the state and local lupus organizations, identified the need for medical education on lupus and led the national effort on Capitol Hill. As a result of the LRI’s aggressive advocacy efforts, a major report from the Secretary of Health and Human Services to the U.S. Congress documented the need for a comprehensive national provider health education program to help eliminate the barriers of racial disparities in the early medical diagnosis and treatment of lupus. Largely as a result of the LRI efforts, nearly $5 million has been allocated by the federal government to provide healthcare professionals with comprehensive training to be able to diagnose lupus promptly and treat appropriately. Called the Lupus Initiative, the education program is led by the Office of Minority Health in the federal Department of Health and Human Services in partnership with the U.S. Surgeon General and the Office of Women’s Health.

Article source: http://www.lupusny.org/lupus-news/2012/05/14/hear-about-results-lumina-study-racial-disparities-lupus-thursday-may-17

S.L.E. Lupus Foundation
330 Seventh Avenue, Suite 1701, New York, NY 10001
Phone: 212.685.4118   Fax: 212.545.1843
Lupus@LupusNY.org

Article source: http://www.lupusny.org/news/foundation-news/2012/05/11/sle-lupus-foundation-loops-ny-world-lupus-awareness-day

Lupus LA is proud to announce that the organization was selected for a pilot study by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) of the National Institutes of Health (NIH) seeking to achieve multicultural parity for people with bone, muscle, skin and joint diseases. As the West Coast division of the 40-year old S.L.E. Lupus Foundation, Lupus LA reflects the organization’s continued dedication to meeting the needs of diverse and underserved populations.

Article source: http://www.lupusny.org/news/foundation-news/2012/05/11/lupus-la-chosen-us-government-lupus-multicultural-pilot-study

Drawing on years of experience in both fast and luxury fashion, Lauren Finney brings her expert editorial eye to any project she’s working on from fashion writing, photo shoots, market work, social media, styling, blogging, public relations, and events. She runs her own blog, Where The Style Things Are, which shares her unique point of view as a southerner making her way in the city. Her past clients include Vogue, Cosmopolitan, Redbook, Ann Taylor LOFT, Eileen Fisher, MIJA jewelry, and more.

She became actively involved with the SLE Lupus Foundation after her diagnosis in 2007.

Photo Credit Chris Clinton

Article source: http://www.lupusny.org/news/foundation-news/2012/05/10/sle-lupus-foundation%E2%80%99s-own-young-leader-shares-story-living-heels-lu